Well, our next surgery is on the books! Thumb surgery #2 will be happening this summer.
Like last time, both kiddos will go in on the same day. It was a challenge the first time, but overall seemed to be the easiest route for us. The biggest downer is that Carson won't attend summer school, and they will be in a cast majority (maybe all) summer.
We have planned a fantastic beach trip that will happen the week before surgery day :) we're excited to see the continued progress when they each have two functioning thumbs!!
It certainly hit home and I responded with "Great read!" We had a conversation after, and my end went somewhat like this. .
I wouldn't trade my boys for anything, but I, too, go through cycles. Times where I'm tired, and not the tired that a good nights rest will solve. Tired as in picking up and carrying kids. .loading and unloading wheelchairs and gait trainers. .always having to be on top of things. .making accommodations for everything. I'm tired. As soon as I think those, or say them, I immediately look at my children and tell them I'm sorry for thinking/saying that and how much I love them. I want something to come easy!
Well, lately, that cycle has been creeping back in. I've noticed the little triggers, like ridiculous issues with friends, or the trips out in public that are just a bit more than I can take. I try and take a deep breath, but sometimes, that doesn't help.
While I was running this morning, the song, I Will Rise, started playing. It hit me. .tears and all. At that moment, God took over my heart and my legs.
He Has called me. Called to me to be a mother to Carson Paul and Braylon Thomas who, everyday, show people to look past their disability and to see their ability! Called me to get on my knees when I'm ready to give up and lean on Him.
I know that some of us special needs momma's make it look easy. We aren't trying to be supermom. .just want our kids to enjoy life! Our days can quickly turn into an emergency surgery or hospital stay without notice.
This little one has my mommy brain on overdrive. I've been researching picky eaters, food aversions, spoon feeding your child with special needs. I think about what he likes - hands and fingers in the mouth and his bottle.
Though, when I try to put food on his hands, he won't put them in his mouth. I've been working on spoon feeding for a good year or so with absolutely no luck, no change, no interest. Last night, Beau was tapping his fingers on Bray's mouth. Bray would open his mouth, stick out his tongue and say ahhh. BINGO! Out of all the tricks I have tried, I haven't tried that...heck, we didn't even know he knew how to do that until last night!
So, this morning, I got our spoon and a jar of baby food. Sat down and did exactly what Beau did last night. One bite in! Then, he caught on..si, I started using his hand to do it. Second and third bite in! It was a bit messy, but I could care less. He kept opening, so I kept feeding. It took us a good 30 minutes, but he finished the jar - YAY!
Hopefully, this is the start something great (besides the multiple baths I foresee in our future).
Well, our trip home from Shreveport didn't go quite as planned. It was nice driving home with snow kissed grounds, but that snow turned to ice the further south we traveled.
After quite a few detours and 8 hours of being on the road, me and the little ones had only made it to Opelousas. My parent's made arrangements at a hotel for us that evening. We had an early start on Saturday, as Carson had to fulfill his King duties at noon.
We left Opelousas around 6:30 am hoping we would have an easy rest of the way of home. Not.so.much. Detours after detours, but at 11 am on the dot, I pulled into our driveway. Hurried up and changed outfits and headed to Rouses.
It turned out to be a fabulous day with amazing weather. We followed it with lunch at West Main (where Carson enjoyed spaghetti and meatballs). And, later that evening, we headed to Nancy's Seafood to have dinner with the Lambert crew - my brother in law mix finally home from Afghanistan!!
Crazy, hectic day that I wouldn't trade a second for!!
One of the hardest part of my job is pinpointing exactly what is helping Carson and Braylon develop.
I'm speaking more of when we change something in Carson's diet and he does something new. Is it from the change we made, or is it due to the fact that he has been working hard on achieving that particular goal?!
If you really know Carson, you know that he has a pretty healthy diet. He loves his quinoa, avocados, lentils, beans, greek yogurt, etc.. Don't get me wrong, kiddo loves a trip to Scarlet Scoop for his dose of Spumoni ice cream ;) But, overall, he has preferred healthier options.
As a family, we have been adjusting our diet and making healthier options - mashed cauliflower instead of potatoes, grass fed meat from a local butcher, spaghetti squash instead of noodles. The latest switch has been fresh eggs.
A friend of the family has a farm near by. She gave me the low down on all the types of eggs they have and how to keep them. Man, oh man! One of the types has a green shell - these are higher in DHA (perfect for Carson). The child LOVES eggs!
And, both kiddos are on some new, all natural vitamins.
It's been 2 weeks since adding this all in. Bray only does the vitamins since he refuses to spoon feed. Mind you, we didn't tell anyone of the change.
The change: Bray has added 2 more sounds to his vocabulary and is adding more sounds together.
He his bringing his legs under his belly more in an effort to crawl, rather than frogging out
and trying to crawl.
Has mastered the stomach to back roll
Carson has become much more vocal. No new sounds, but using the ones he knows more
Bringing more things to midline vs. on the sides of him
Being more assertive at things he wants or to trying to get your attention
Again, are these solely due to changing diets and supplements?! Probably not, but I do think they play a huge role coupled with all of the therapy.