Tuesday, November 18, 2014

Lately. .

I have been on a bit of a hiatus, lately.

Everything seemed to finally be settling down - shunt issues were becoming less, doctor appts. were spacing out more, the routine of therapies was getting better, etc.

In the blink of an eye, everything changed.

My sister and I have been running the cafe' while my mom has been doing treatments at MD Anderson. To say it's been easy would be a lie, but we are making it. Our mom has given up SO much for us, and she finally had the chance to open something that has always been a passion. Taking over the cafe' was a no-brainer.

I took some anger out on God. Our family was finally all in a good place... WHY THIS...WHY OUR MOM?!? I just didn't (and still don't) understand. We stopped going to church, even though we still prayed. I started re-evaluating relationships with friends. And, for once I left my phone in the car and fully enjoyed the pumpkin patch with my boys. I have no pictures to show of that day, but we had an absolute blast!

Pretty cool how God works.

I failed part of His test by doubting and turning away from Him..even for a brief moment. It's happened before and I told myself it wouldn't happen again. I know this is all a part of His master plan.

We are back at Church, and I'm loving our new priest. His messages continue to hit me every Sunday. We have made a 'winter bucket list' for the boy's. As far as re-evaluating friends - guess, I should say, people in our lives - that's still in the process.

Everyday is a gift...Every ability is a gift...

Saturday, October 25, 2014

Daddy Love...


                                                   These boys LOVE their daddy!! 

                       

                                  It's always a race to the door when I yell out "dad's home"

Monday, September 29, 2014

Cowboy Up. .

Equestrian Therapy has started back up! I'm really surprised at how quickly he adjusted to being back in the saddle. 

On his first ride, he was placed on the horse backwards. It made him work a bit harder considering he didn't have the reigns, but he great! Lasted 45 minutes.

                         
     

The second ride, we put him on the correct way, and he never had an issue with falling. Lasted the entire hour!

Now, he's a pro :)

We are really crossing fingers and saying prayers that this (coupled with his other therapies) helps him stay off the operating room table for hip surgery. Ugh! I hate having a possible surgery linger over our heads. 

                       
      

Sunday, September 14, 2014

I Will Walk By Faith,


                                                 Even when I cannot see. 

I finally stopped long enough last night to think about what is really going on in my life - the hard stuff. Reality...my mom has cancer. Ugh, I hate that word, and seeing it written makes me want to burst into tears. 

Our family is being tested. Our faith is strong. I'm not fond of His plan right now, but I can't see the entire picture either. He will show us the path, and we will lean on Him every step of the way.  


      


My mom is in great spirits, and everything we know, as of now, seems positive. She is seeing a great team of doctors and is in the process of figuring out the best plan of treatment. While she and my dad are away, my sister and I are holding the cafĂ© down. 

It been quite the adjustment for me, but I'm finally getting it ;) I never really knew of the behind the scenes work that goes on. Whew!! 

I know, that through all of this, my family will come out stronger than ever. We may have days filled with tears. .others may be filled with smiles. .either way, God will lead us through this. 

Monday, September 8, 2014

Saints. .

                 
                                                          First, we had the 5k....

                          

       

                                                                          
                         

                             Then, we enjoyed the day on Bourbon. Dancing & riding the bull. 

                                          
                                       

                                       

We did enjoy lunch at Ruby Slippers and did a little shopping, too. Perfect day with some amazing friends. Sadly, our boys didn't win, but it was a great family day. . recouping from the day before ;)




Friday, September 5, 2014

Hello, Pre-School. .

Never in my wildest dreams did I think Braylon would enjoy going to school. He only went 2 days this week, but both were a complete success!!

I love that he is proving me wrong. Honestly, I was so nervous as this day approached. I'm talking about the child who threw fits when I would drop him off at his grandparents' house. .the one who would STOP breathing when I would put him in his stander. .let's face it, a total momma's boy.
     
                                   


I'm excited for the weeks to come and to see him progress. The time apart is very refreshing. . a little awkward at first. As ready as I was for him to start school, the realization that I don't have anymore babies at home hit me. When Carson started pre-k, I was big and pregnant with Bray. It's a new phase of life for all of us.

Bray - time to spread those wings a little more. We are so proud of the little boy you are becoming and look forward to the many adventures you have in store. Have fun and don't reveal all your secrets at once ;)


Sunday, August 31, 2014

It's Official. .

Come Wednesday, Braylon will be starting school! We are starting him out as a part timer, and when he turns 4, we'll put him in full time.

Ready or not!

This will be quite the adjustment for both of us. I will no longer have any babies at home with me, and he will be in a class with quite a few other kiddos.

The IEP went well..most everyone in the meeting knows us from having Carson, and I couldn't be more excited for the teacher/para combo we have. Although, sometimes, I want to look at them and say, REALLY?!

I had prepared myself for the comment, "he needs to be off the bottle." And, in true fashion, it was mentioned. I took a breath and stated that he was on the right track and we are approaching this a little different than we did for Carson.

Carson lost the ability to suck when transitioning from the bottle to the spoon. That led us to having a G-tube placed for H20 and added therapy to find a cup he could use. He went from a cut-out cup to, now, having the honey bear. We only had the G-tube for 1 year, but if you've had one, you know about the extra stuff. We are trying to avoid this issue with Bray.

It would be so nice if all of these transitions went as smoothly as they do in the books the therapists read, BUT it doesn't. I don't know... maybe they forget that we are also dealing with many other issues, a strong willed personality, and a child who has constant ants in his pants.

With that said. .I'm thankful for the team Bray has. Like it or not, he's on the bottle (for now), and we will continue to work on it. I'm hoping and confident he will hit the goals we made for him, and that he will make lots of friends.