Come Wednesday, Braylon will be starting school! We are starting him out as a part timer, and when he turns 4, we'll put him in full time.
Ready or not!
This will be quite the adjustment for both of us. I will no longer have any babies at home with me, and he will be in a class with quite a few other kiddos.
The IEP went well..most everyone in the meeting knows us from having Carson, and I couldn't be more excited for the teacher/para combo we have. Although, sometimes, I want to look at them and say, REALLY?!
I had prepared myself for the comment, "he needs to be off the bottle." And, in true fashion, it was mentioned. I took a breath and stated that he was on the right track and we are approaching this a little different than we did for Carson.
Carson lost the ability to suck when transitioning from the bottle to the spoon. That led us to having a G-tube placed for H20 and added therapy to find a cup he could use. He went from a cut-out cup to, now, having the honey bear. We only had the G-tube for 1 year, but if you've had one, you know about the extra stuff. We are trying to avoid this issue with Bray.
It would be so nice if all of these transitions went as smoothly as they do in the books the therapists read, BUT it doesn't. I don't know... maybe they forget that we are also dealing with many other issues, a strong willed personality, and a child who has constant ants in his pants.
With that said. .I'm thankful for the team Bray has. Like it or not, he's on the bottle (for now), and we will continue to work on it. I'm hoping and confident he will hit the goals we made for him, and that he will make lots of friends.
Wednesday, August 27, 2014
I knew 1st grade was going to be a day by day thing, and that we would have to adjust Carson's schedule accordingly. We actually did just that on the 2nd day of school. Carson was the most excited about the change. .and that's what counts :)
So, like always for Parent/teacher night, you find out the new changes for that school year, meet everybody, then head to your child's classroom to really get to know the teacher. Well, Carson isn't with the actual 1st grade teacher for too long out of the day. This is the first year C has moved up and we didn't know who the teacher would be.
So, we went to the first grade class, sat in their little desks and was able to view some of the material they would be learning throughout the year. In that instance, Carson's delay hit me. He's out of the 'center time' and on to the big leagues. I looked at my husband, and could tell he saw it too.
I'm pretty sure my mind shut off somewhere in the short presentation. Honestly, I felt like we didn't belong (and, no, they didn't make me feel that way...the seasoned teachers know who C is and have seen his accomplishments). We introduced ourselves to his actual teacher, and just let her know that I would help in any way.
As soon as we left, my husband said he didn't want to go to one of those again - I was thinking the same thing. We shall see.
I can say that we ended the night on a good note - date night! We had to remind ourselves that something will remind of us our kid's delays everyday..we have to look past it and remind ourselves of how far they have come.
Always focus on the positive!
Monday, August 25, 2014
Last night, I swore I would take no part in the ice bucket challenge if I were to be called out.
One of my sole sista's called us out, and we couldn't leave her hanging. BUT, we didn't donate to ALS. .we donated to a local family near and dear to our heart. So, I can totally scratch that off my list.
Sunday, August 10, 2014
Let's get right to it. .
Carson's right hip is not looking good, at all. It was definitely not the news I was expecting to hear at our recent appointment at Shriner's. Especially since the last scan taken 6 months ago showed perfect development.
While lying on his back with legs straight out, his right hip is out of socket by 40%, and his right socket has less of a curve to it than it had before. So, what do we do?!
Well, given that this was his first 'off' scan, and the fact that this summer's surgery had all therapies on hold, the doctor is going to give us some time to see if we can correct it. (40% is when they consider it time for surgery) She gave us some braces that he will wear at night, we have to be more mindful of the way he sits, and we have to push him more at weight bearing. Plus, we will be hitting horse therapy harder than ever!
The bracing at night is going well. Weight bearing gets better each day - he's back to trying to take a step on his own :)
The doctor and I feel confident that we will be able to correct this issue, and that we can avoid surgery. I sure hope so! Something about an 8 week body cast doesn't sit well with me. Im praying that when we go back in February we will have a good scan.
Monday, August 4, 2014
I wasn't too happy when we were told that our church parish would be getting a new priest. Father Clyde has been there for so long, and has seen me grow from high school grad to becoming a special needs momma. He news my family and always wanted to know the latest with the boys.
We had recently received a new associate pastor. Honestly, I'm not a fan. We have a bit of a language barrier, and I like to hear how I can apply the readings to everyday life. I just wasn't getting anything out of mass when he was there.
On to the new guy, Father Joey. LOVE HIM! He's real..down to earth..personable..easy to understand. I had a few tears last night during the homily. I could place myself in the story he was telling. Not only did I hear his homily..I felt it (he's 2 for 2 in that department) My husband even walked out saying how much he enjoyed mass!
I look forward to mass now and getting to know Father Joey. Sadly, I haven't said that in a really long time.
Tuesday, July 29, 2014
I'm over you! My little bro has been driving me bonkers - scoots next to me when we're on the floor, grabbing the iPad when I'm trying to play my game, coming into my room, and so much more! Did I mention how loud he is?! He even talks in his sleep!!
Mom told me I wasn't being a nice big brother when she came in my room and I had him pinned in my closet...or, that time I put the basketball net on his his head. It wasn't my fault he pulled the net down over his head! I tried to help her with house cleaning, but she wasn't amused when I started pulling clothes out of my drawer and throwing them on the floor. If she only knew I heard her laughing in the other room.
And what's with brother taking up floor space? I'm trying to practice my walking! Mom just doesn't get it. She thought the floor divider from the hallway to the bathroom would stop me from coming in. Not.so.much. I don't get privacy from my bro, she doesn't get privacy trying to get ready.
We've been doing this whole 'countdown to school starting' thing. It's still too long. .i think mom is adding days. I want my friends! I need to get out of this house! Where's my bus?!?
Love, Carson Paul
P.S. Mom said something about brother joining me at school. She can't be serious...can she?!