Sneak Peek...

Of Braylon's big boy room. Still have a few things to do, but it's come together nicely and he sleeps SO much better than before :)

Neutral Rug from Target

Vintage Airplanes Duvet Cover from Restoration Hardware Baby

Lighter wood color for his bed and dresser. We didn't re-paint his room. .although, I haven't found another color that fits, yet.

Tick, Tock. .

6 DAYS...

Aquarium. .

Carson's Pre-K class recently visited the Aquarium. We had an absolute blast!! Carson loved looking at the bright colored fish and coral, but I think his favorite part was the penguins. We timed it perfectly and were able to see the penguins chow down on some lunch. As I pushed C along the tank, a penguin kept up with us. I stopped and told C to look at him. The other kids told Carson to clap to see what the penguin would do and he started bobbing.

It was so cute. We ended up staying there the longest since the kids were having fun and the penguin seemed to be loving them. Wouldn't it be nice to have a penguin as a pet?! We picnicked by the water and headed back home.

Pre-K is coming to an end, but, thankfully, these amazing kiddos will be in the same class next year :)

Riding on the charter bus (top). .Class pic. .Carson's new friend!

Bittersweet. .

Tonight is the last night of Braylon sleeping in his crib. Tomorrow afternoon, his crib is being moved out and his big boy bed is being set up.

It's bittersweet for me, as well. As much as I (and Beau) would love to have another child occupy the crib and fill our hearts with more joy, we have decided to count our blessings. .Carson and Braylon.

My heart knows that we have more than a full plate, but my heart also longs for that child that doesn't have a disability. What's that like?

'Spinning our eggs' or 'weeding out the bad ones' doesn't sit well with us, at all. And, yes, I had a geneticist describe that procedure as 'weeding out the bad ones' with Carson and Bray looking at him. NOT.A.HAPPY.MOMMA. Personally, it's not for me to decide which egg to use. That's for God to decide, and I think He did a pretty great job :)

As I talked to the young couple who will be getting the crib, I couldn't help but reminisce about being pregnant for Carson and having the baby furniture delivered.

Guess it's on to the next chapter. . .

Whew. .

What a day! It was good. .just long.

I'm so thankful my hubby was able to tag along for the appointments and for the help. Bray started our day off with a visit to Dr. K (GI). Basically, we will stick with feeding clinic, but we are discharged from having to see him regularly - Woohoo!! 

We headed to Roly Poly to grab lunch and took it to the park. It was a beautiful day and the boys enjoyed the fresh air.

At our next appointment, we received the sad news that Carson's neurosurgeon was retiring. I love, love Dr. Walsh. He was there for Beau and I before I even delivered Carson. .so encouraging. .took his time with us. .attentive listener. .just a really great doctor whose heart was there for every child. I'm sad that we won't see him again, but feel so fortunate that he has let me know how amazing Dr. Bui (Bray's neuro) will be with Carson and for years to come.

Our last appointment was for both of the boys - neurologist. She was amazed at the progress of both of the boys. YAY! She scheduled us an appointment with a Pediatric Thumb Specialist. I'm excited and nervous. The use of their thumbs would be huge. In order to get that, it would require major surgery 2 separate times. So, our appointment is in a couple of weeks and we will see what she says.

Other than that, we were given the clear for 6 months and pre-admitting Braylon for his sedated CT,EEG and EKG in June, we were done.

Now to do some research and work on decorations for Carson's graduation. .

Boating. .

Tiny man went on his very first boat ride. .and LOVED it!! We couldn't have asked for a more beautiful day.

Beau had Carson during the boat ride. Every time I would look back, all I saw were smiles!! I see many more days on the water for these kiddos!

The Big Game!

Tuesday night, was the game we had been waiting for! Carson had been asked to throw the first pitch at the UNO vs. NSU game.

It was the perfect night for a game. Upon arrival, we were greeted by the athletic director and was escorted to the field. The coach quickly greeted us and bent down to give Carson a high five. The team came in and all greeted Carson - big guy was loving it!!

The coach took Carson to 'warm up' his arm and show him the dug out, field, etc.. In the meantime, Beau saw some familiar faces on the opposing (NSU) team. Once Beau filled UNO's coach in about him playing for NSU, coach laughed and understood why Gina (our Miracle League Director) picked Carson for this particular game ;)

It was so great to see Beau back in that baseball mode and to see how proud he was that Carson gets to be a part of this. He was so happy to wheel Carson out to the mound. After C threw his pitch, the coach presented him with a signed ball, as well as a few other balls to have and play with.

Big thanks to all of our friends and family that came to support Carson & to Miracle League and UNO for allowing our child to be a part of something so great!!