Thursday, August 11, 2016

We Have A. .


Monday morning I met with the head of Special Ed and our teacher..expressed my concerns from last year (you know, the ones that were supposed to be handled then, but never were)

And. .Carson stayed at school.

This year is a bit different since we are re-located to a different school while we get a new school built. Instead of Carson having 4 students in his class (like last year), it's just him and one other.

We should be hitting goals left and right if you ask me.

The other things we changed was the amount of time he would be in his gait trainer. Lunch/Snack/Bathroom are the only times he should be in wheelchair. He's also spending more time with 2nd grade courses - yes, he's a 3rd grader, but that grade is upstairs, and well, that doesn't work for us.

He has been SO happy going to school this week. It's such a nice change from last year, and I'm thinking this should be a great year. I'm glad the head of Special Ed listened to my concerns and made immediate changes - should be a no brainer, but sadly it's not always easy. 

Just waiting, now, for Pre-K to start so I can go back to being that bon bon eating, soap opera, veg on the couch stay home momma! LOL 

Sunday, August 7, 2016

Tackling Special Ed. .

Last year was a complete struggle. Carson went from excited and ready to go to rolling his eyes and turning over in the morning. Bribery was in full force. As a mom, I knew a change needed to happen. Unfortunately, they didn't quite happen even though I was told they would. So, after the recent update of no surgery...getting Carson back in school was not something I was looking forward to.

I'm a realistic parent. I care more that Carson will one day feed himself vs. knowing the circle is blue. Communication device - yep, we have a fancy one that attaches right on to his wheelchair! Walker - got one of those, too!! Special Ed hasn't always been difficult to navigate, but once we hit 'severe/profound' status - hello, issues.

To be frank, it's been rather difficult and annoying to express my expectations without someone making a comment about expecting more from my children. Mind you, the ones who have the MOST comments are not at the school everyday, and couldn't pick either one of my children out in a line up. Guess what, peeps, I live this life every. single. day. If you took the time to know me, you would see that I do have high expectations for my children. They just might not align with yours. I'm. OK. with. that. Hence the fact that we are a team.

It just makes for unnecessary stress and bullshit.

Severe/Profound is SO different from our past years, and this momma is still trying to navigate through it. Ex. Say your child has a teacher that they don't click with. Yes, it makes for a long school year, but after that year, it's on to fresh blood. With severe/profound, the child and teacher are together 2nd-6th grade. So, if that first year is rough..........yeah.

Here we are. Day before the 1st day of school, and this momma is nervous as all can be! Carson and I have a meeting with the head of Special Ed plus our teacher. Hopefully (prayers, fingers crossed, positive vibes) we can meet somewhere in the middle and Carson will enjoy school once again.

There are times that we, including my special needs children, have to suck it up. That's life. They have their limit, and I have mine. As far as Carson and school...we are at that limit, and it's time for it to go in Carson's favor.

Saturday, August 6, 2016

Surgery Verdict. .


Back story: Last appointment in January, Carson's scans showed that it was time for us to  schedule hip surgery. We had been dodging the ball for quite some time, but the time had come. At that appointment, we opted to wait to schedule in the fall for cooler temps (8 weeks of a near body cast in the dead heat of summer - no thank you). This recent appointment was to re-scan to know exactly what we were dealing with and to schedule hip surgery.

Over the summer, I signed Carson up for Hippotherapy at a new location. I have seen in the past how well it helped, and figured this was our last try at seeing if we could see any type of correction in his hips. <our last facility was nice, but the appointments were hit or miss, and the location was a trip for us>

Back to the appointment. .  

Dr. comes in and asks if we are doing anything new. I fill her in on that we have been doing Hippotherapy as much as we could over the summer. Her reply, 'don't stop...I'm not touching his hips.'

Were his hips perfect -- No, indeed! But, they were better positioned since his last appointment, he was showing no signs of pain, and he was continuing to hit goals. I was completely relieved on hearing the news, and the fact that the risks of surgery far outweighed the benefits at this point.

So, now I'm back to figuring our what to do for Carson as far as school. Good news is that we can basically get back to our regular program called life, and Carson and Bray are signed up for as much Hippotherapy as they can get!!

God is Great - definitely a HUGE blessing that we are completely thankful for!!

Monday, July 25, 2016

Monday Morning..The Struggle Is Real

Here's to Monday!

I have a cranky, whiney 5 year old who slept a whopping 2 hours (if that). .

A 9 year old who has an attitude due to his brothers' crankiness. .

And a full day of appointments. .

At least I go a great workout in at the crack of dawn.

Wednesday, June 22, 2016

Summer. .


Carson's kicking off summer with one of his favorite camps. He was so excited to see David (one of his counselors from last year) that he nearly jumped out of his wheelchair. I have no doubt that this will be an amazing week. 

While Carson and I tackle the early morning rides to NOLA, Beau is making sure Bray makes it to school for his last week. I'm excited that, hopefully, Bray will be able to partake in this amazing camp next year :)


This camp has been talked about throughout Miracle League, so I knew we had to give it a try. It certainly did not disappoint, and will be on our list every summer from here on out! This was a sleep away camp (C did Lion's Sleep Away Camp last year and really enjoyed we added a few more this summer). Not only was his counselor ready and so welcoming, but we were able to see some of our friends from Miracle League. 

A week of paddle boating, swimming, horse back riding, making new friends, etc....PERFECTION!!

While Carson was at camp, Beau, myself and Bray headed to our favorite Memorial Day spot - Seaside, Florida!

The water was crystal clear, the air was hot with little humidity, and we enjoyed some R&R. We missed Carson, but knew he was having a blast from all of the pics they sent. And, it was nice to have that one on one time with Braylon. I know he thoroughly enjoyed it...maybe a little too much!

On our way home from the beach, we picked Carson up. His smile, y'all!! Goodness, that kiddo had so much fun, and the counselors raved how well tempered he was. He gets that from his daddy! We cannot wait until next year's camp!

We got home to, literally, unpack, and pack everything back up for....


Carson, Bray and myself headed to North Louisiana for MedCamp. This was a camp I had seen on a list, but had never heard of anyone going. Thanks to FB and a couple of friends in that area, I quickly learned that this was a camp we must try!

Another winner!!!

They had pretty much the same activities as Dream Street - which is awesome because the kids stay busy all day. Different groups would come out and teach the kids about different things. For instance, one day they had Battle of the Badges.

Firemen vs. Cops

The kids learned all about how each of them help and protect the community, how K-9 dogs are specially trained and help them, etc.

That's only one example, but they had things everyday. It was funny to hear that, from both camps, Carson's favorite thing to do was horseback riding and paddle boating.

Braylon and I hung out at my cousin's house in Shreveport for the week. We go there often for appointments, but it was nice to go and not have a schedule. Just enjoy time together!

Carson was not ready to come home when Friday came. Seriously, if there was an all summer camp, he would be totally fine in attending it!

I am proud to announce that Carson received KING for the week from his peers and counselors.

So, here we are now..back home..back to regular therapies, BUT only for a couple of weeks ;) Carson will be shipping off to his final sleep away camp for the summer very soon.

Until then, we'll enjoy OT, PT, HippoTherapy, some pool time and lunches with friends :)

Wednesday, March 30, 2016

No More Rat Race. .

This school year has been rough for Carson. There are certain times when change is inevitable, and I try to prep him for as much as I can. Most times, he gets in the groove after a few weeks, but that hasn't been the case this year.

His classification changed.

His teacher changed.

His classmates changed.

His expectations changed.

That's a whole lot of change for C. Unless something is truly harming him, we stick things out. Let's face it, life is full of things we don't like or don't want to do, but you have to learn to deal with it at certain times.

We keep encouraging him, and reassuring him that he can make it to May. I'm telling you..he used to be awake and excited before anyone in the house. He would get so excited when I would ask if he was ready to go see his friends. Not anymore. Most days he won't be awake, and if he is, he isn't too excited.

We have tried different things with him, but he just doesn't like his class. And, if it would only be for this one year, we wouldn't be as adamant on changes as we have been. He'll be in that class for the next 4 years. It's severe/profound class. Cue in mom and dad.

There are certain things I find more important - feeding himself, walking, making choices, etc - than, let's say, knowing that the circle is blue. Which is going to be more beneficial in 10 years?! 

On top of all of this, he'll be undergoing hip surgery in early fall. It will be out of town and quite extensive. So, for next school year, he'll be placed on homebound.

Basically, homeschool, but he will still receive services from the special ed department at home. It will give me the chance to work more closely with him in those certain areas, and not have to worry with the hustle and bustle of getting to school. I'm excited for the change and very happy that I have the support from his doctors and therapists!

Here's to being a homeschool momma :) No, Braylon will not be home schooled. He's doing amazingly well in pre-k with his teacher, and we are looking forward to another year with her!

Wednesday, March 9, 2016

Sometimes, Life Just Sucks. .

Death....there is no guide to get you through the days.

I lost my mom this past January. The lowest point in my life. I watched my mom fight, and let me add that she put up one hell of a fight, to beat it. My family and I watched as she went from an independent, selfless woman to a mom who needed help with the simplest of tasks.

It was hard to watch, but she gave it her all everyday. That made it easier to bear and put a smile on our face. Most days consisted up hanging out in bed watching the Cooking Network with her. It didn't matter, she was here.

I was with her until the very end. There is nothing that can prepare you for those moments. And, as hard as it is to not have her physically here, I know that she is watching down from heaven - pain and cancer free.

Since her passing, most days I have to ask if this is just a terrible nightmare....days where I'll yell out, Mom, in hopes that I'll hear her voice. It just doesn't seem real. She's supposed to be here! Carson and Braylon had many more memories to make with their GiGi. She and my dad were supposed to grow old together.

I can't really say that it gets easier as time goes on. If anything, these last few weeks have been extremely difficult - it may be due to my celebrating events that she was supposed to "physically" be a part of. Or, it could be the sheer fact that she was a major part of our everyday life, and she's not here.

I'll just continue to take each day for what it is. .