I watched Carson try SO hard in therapy. I had a smile on my face while my heart was slowly shattering. His brain and legs weren't making the connection.
Basically, we are pushing him to that next level. Carson will take steps while we hold his hands, and he does pretty well (there are a few issues) when he's in his gait trainer. Today, we removed the seat part on his gait trainer, but kept his chest harness on. You would think it would be similar, if not the same, as one of us holding his hands. .but, it's not.
Carson knew he needed to take that step, and he was trying - tongue out, his breathing changed, and he was pushing through his right foot to make his left foot move. His therapist and I were encouraging him the entire time. Not long after, a few of the other therapist were in there rooting him along.
We cheered so loudly when his foot moved, literally, the tiniest step ever. HE DID IT, and the smile on his face proved it. Then, we noticed another problem. His leg started shaking, and we had problems getting it to stop.
It's called clonus. He had this as a baby, but once he started really weight bearing, it went away. Well, it's back (we've noticed it more lately, but we've been able to stop it by applying pressure to his hip). Today, it took a good couple of minutes for it to stop.
Carson's therapist and I talked about the issues she was seeing, and about his upcoming appointment with Dr. K, and physio dr.. She said that I should probably bring someone with me.
I asked if it would be information load, and me feeling mad that we weren't introduced to him 5 years ago. She said yes, but at least we are seeing him now. .this may be a long road. .but, I have her and our other therapist right there for help. Deep breathes...
I'm so thankful for our supportive therapist. I know we'll figure it all out, but for now, we'll celebrate the small achievements :)